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Wednesday, July 6, 2011

Pseu-Pseu-Pseudo-Tumor.


Hello everyone.

So, I know alot is circulating out there about me and I just want to clarify. So, here is just whats going on...

If you don't know me too well, you didn't know that this past semester in school was the hardest for me. I was taking 24 semester hours, working 2 jobs and babysitting 3 days a week. I was stretched thinnnn. So, of course, all of my health problems I just gave up to stress and sleep deprivation. Looking back, I wish those would have been my only problems.

In April, I began to lose my vision. I was very very dizzy. I had ridiculous headaches. But, of course, I chocked up all up to stress.

Until the day I had my wreck....

Scariest experience of my life.

I wasn't sure if I had blacked out when it happened- I couldn't remember.

This is when my sweet mama began to worry...

Within the next few days, my health went from bad to worse. It was Easter weekend and I couldn't even go to church on Easter. So, Good Monday rolls around, and I am first one in the doctors office. He immediately sent me for an MRI and ran alot of tests on me.

As I look back on that day, I remember seeing the distress in my mama and daddy's faces as I was taken back. It was rough.

MRI=done.

Result=nothing. nada. nado. ziltch.

We were in a state of relief. Maybe the tests will reveal something? Hopefully.

I am sent home with a bag full of medicine and ordered to sleep.

The next few days after this are a blur of things...

Things really were not adding up and were not getting better so, my mother researched and researched until she found some answers.

She made me an appointment to see an Ophthalmologist who referred me to a Neurologist. She wouldn't tell me exactly what was going on, but she knew already what was wrong with me.

I was diagnosed on April 27, 2011 with a neurological disease called Pseudotumor Cerebri. Or, Benign Intercranial Hypertension. To explain, I have an excess of spinal fluid on/around my optic nerve(causing my loss of vision) putting pressure on the nerve and causing me all of these problems. My body thinks I have a brain tumor, but I really don't. Make sense?

To treat this, I am on several medicines to help the fluid to drain.

If the pressure doesn't improve and go down, I will sustain permanent vision loss.

I had an MRI on Monday, I saw an Ophthalmologist on Wednesday, I had a Spinal Tap on Thursday, thought I was dying on Friday, Saturday, Sunday and Monday.

The LP(lumbar puncture) was to confirm the diagnosis and also to relieve some of the pressure. And it was as terrible as it sounds. I really, honestly thought I was dying.

It has been about 2 months since the diagnosis, and my pressure has gone from the worst it can possibly be to better, but still not good. I am now facing surgery to prevent me from losing my vision. We will know at the end of July for sure if I need surgery.

Please, if you are a praying person, please pray for me.

And for those of you already praying for me, thank you, so much.

I have a long road ahead...


caitlynk.

4 comments:

Alyssa said...

You keep that stress level low as possible (easier said than done, I know) and know I'm definitely praying!

Jeri Newman said...

Wow! Sounds like you are on quite a journey. Just wanted to encourage you and let you know I'll be praying for God's best. Psalm 34:4 says, "I sought the Lord, and he answered me; he delivered me from all my fears." Love you!

Lauren said...

Wow! Such a good post! I'm sorry that you have been put through all this MESS but GOd knew that you could handle it! So thankful for our father and for the joy that he will bless you with when this is over with and DONE! Love you! :)

Anonymous said...

Dearest Caitlyn, can I say out loud that this is my first time to write in/on (what's correct??) a blog. But since you are special, thought I'd give it a try. I can't compare your blog to anyone else's (see first sentence) but I will say I sure do love your blog design! Cool! I love you and shall miss your visits at Worklink when you move far and away to Columbus. I also love yo mama - you two are great gals and great friends. I wish the very best for you. Ruth Kendall

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